Wednesday, September 10, 2014

The Teal Warriors

New Delhi/Gurgaon: Ritu Bedi was diagnosed with ovarian cancer last year after experiencing abdominal pain and urinary problems for months. It was a blow from nowhere. Her family, and even the doctors treating her, had thought she might have been suffering from irritable bowel syndrome (IBS) or issues related to pre-menopause.

“The cancer was already in an advanced stage by the time it could be diagnosed. It took a major surgery and six months of chemotherapy at a New York hospital for me to get a new life. But not everyone is lucky,” says the 48-year old IT professional.

To spread awareness about ovarian cancer and its symptoms, Bedi has now started a unique ‘India Teal Warriors’ campaign on social media. September, she says, is ovarian cancer awareness month and teal is the awareness colour. “Teal is associated with ovarian cancer much like pink is associated with breast cancer,” said Bedi.

Her campaign on social media has become a rage with hundreds of people, many of them from Gurgaon, joining the Facebook page and posting messages in support. Many corporate houses, individuals and NGOs are lending their support by using the teal theme on company websites and social media. While a student of ITM University, Shreya, has painted her nails teal, a corporate employee, Kala has bought a teal T-shirt to participate in a ‘teal party’. “It is important even for young girls to know about the disease, as we can educate our mothers and grandmothers,” said Shreya.

A resident of Sector 56 in Gurgaon, Kala, on the other hand, also wants her male colleagues to join the campaign. “It is not only women who need to be educated about the disease, men, who are generally the decision-makers in a household, should also know about the disease,” she said.

The campaign is being supported by CanSupport NGO, which is encouraging women to get check-ups done. “The idea is to get women to pay attention to symptoms and get checked-up. Also, in our country people do not share information about diseases in family. We need to tell people that it is important to take preventive measures,” said Nikita Gupta, who is supporting the campaign too.

Awareness crucial to surviving ovarian cancer

Not many people take time to learn about ovarian cancer – until it hits close to home.

With each passing year, 15,500 women die from this disease. Although there is no specific test to detect ovarian cancer, it is the ninth most commonly diagnosed cancer in women. Typically thought of as a “silent” disease, ovarian cancer is actually noisy. We just tune it out.

Early signs and symptoms are vague, but a recent research study pinpointed a cluster of symptoms that occur more frequently in women with ovarian tumors, especially if they appear suddenly or last over an extended period of time. This triad consists of abdominal bloating, increased abdominal size, and urinary urgency. In the study these symptoms were reported almost daily in the women with ovarian cancer. Other research validates the notion of the early triad. Identifying this symptom index justifies ordering tests to evaluate them and legitimizes the expense of these tests to insurance companies.

Other changes to report include feeling full after a small meal, unexplained weight loss, indigestion, constipation, diarrhea, fatigue, and abdominal uterine bleeding. Ovarian cancer should be ruled out first instead of last and, if suspected, should be evaluated by a gynecologic oncologist.

A test to accurately detect early stage disease has yet to be perfected.

While scientists continue to pursue a variety of screening tests, mostly based on specific protein patterns and markers in the blood, doctors are forced to rely on a transvaginal ultrasound and CA-125 blood test.
Only half of women with early stage disease, however, have elevated levels of CA-125, signaling why a more specific and accurate screening test is vital. Further compounding early diagnosis, by the time a woman recognizes her symptoms, the cancer often is advanced.

Indicators that increase the risk of this disease include personal history of breast cancer, family history (maternal and paternal) of breast, uterine, ovarian or colorectal cancer, certain breast cancer genes, obesity, and use of fertility drugs, especially without achieving pregnancy.

Factors that decrease risk include oral contraceptive use, particularly of five or more years, childbearing, breast-feeding and tubal ligation after childbearing.

A few large studies have found that regular tea consumption is associated with a lower risk of ovarian cancer. Green, black and oolong teas were all effective.

Also, preliminary studies show that women who take low-dose aspirin daily reduced their risk by 20 percent. Researchers caution that more studies are needed before implementing daily aspirin therapy, so be sure to discuss this with your doctor.

Further guard your health by obtaining annual pelvic exams, knowing your family history and sharing it with your doctor, and becoming familiar with what is normal for your body. If you note the triad of symptoms frequently throughout the month, specifically request a transvaginal ultrasound and a biomarker blood test.
High risk women should discuss with their doctors the advantages and disadvantages of genetic counseling to gauge their risk of developing ovarian and breast cancer.

This is of particular importance for women with a personal or family history of these diseases, as well as having relatives with male breast or prostate cancers, because variations of specific genes have been identified in the development of some types of ovarian cancer.

Awareness events conducted around the world

I-35W bridge lit teal for ovarian cancer awareness

Those who took a drive on Sunday night may have noticed the Interstate 35W Bridge has adopted a new hue – and there’s a reason for it.

The Minnesota Ovarian Cancer Alliance (MOCA) lit the bridge in teal on Sunday night to mark the start of Ovarian Cancer Awareness Month to raise awareness of the disease. September marks the month long awareness campaign, which includes the group’s 15th annual walk and run at Roseland Park in Edina on Saturday.

An estimated 3,500 supporters are expected to take part on the HOM Teal Strides for Ovarian Cancer. The event raises money for research and programming. So far, MOCA has provided $ 4.5 million toward research.

Upcoming 5k to raise awareness for ovarian cancer research

Louisville, Ky. – September is national cancer month, and a local organization is hosting an event for ovarian cancer awareness with a 5k walk.

The Whisper Walk 5k for ovarian cancer awareness will be held on Saturday, Sept. 13.

The walk will be held at the Douglass Hillpool parking lot at 501 Gatehouse Lane.

The walk is in memory of Dee Edwards. For every $ 100 raised, adults will be entered into a drawing for a $ 100 Kroger gift card. Students under 18 will be entered into a drawing to win $ 50 cash.

There is also an event at El Toro Mexican Restaurant on Thursday. For the whole day, 15 percent of customers’ total bill will be donated back to Ovarian Awareness of Kentucky in memory of Dee Edwards and in honor of all those survivors still fighting.

Birmingham to ‘Turn the Town Teal’ in support of ovarian cancer research

Teal ribbons are going up around Shain Park in September as part of Ovarian Cancer Awareness month.

Jacqueline Bayley never saw it coming.

In 2009, she was diagnosed with ovarian cancer. She was 31 years old and in good health when she decided to see her doctor about a lingering stomach ache. Less than three years later, she passed away.

“She was blindsided by her diagnosis,” friend Eleanore Schroeder said. “But that’s the tricky part of ovarian cancer – a lot of patients are diagnosed too late because the symptoms are vague and easily confused with less serious symptoms that women commonly have.”

For the next several weeks, Schroeder and other organizers will “Turn The Town Teal” (TTTT) by tying teal ribbons around Shain Park in an effort to bring awareness to this disease.

“Teal is the ovarian cancer research color” she said, adding the ribbons will have information on them about recognizing the early warning symptoms.

It’s the third year of the TTTT campaign, which is taking place in Royal Oak, Northville and other local communities throughout Michigan.

Baldwin Public Library Board Trustee Andy Harris also was a close friend to Bayley and is helping with the campaign.

“She was one of the most energetic, dynamic, intelligent people I ever knew,” said Harris, who met Bayley and her husband through Schroeder in 2003. “She had a vibrant spirit that we miss to this day.”

In addition to the promotional campaign, Schroeder established the Jacqueline E. Bayley foundation (www.jeb-foundation.org) to raise awareness about ovarian cancer. The foundation recently partnered with the Barbara Ann Karmanos Cancer Institute in developing more effective ovarian cancer screening and earlier detection methods.

“She was one of the spirited and talented people I ever met,” said Schroeder. “We miss her terribly.”

Cheerleaders, community members don ribbons to raise awareness for Ovarian cancer

West Windsor – Members of a Pop Warner Cheerleading team as well as community members and students gathered on Thursday.

Among those who donated teal ribbons for Ovarian Cancer Awareness Month was 13-year-old West Windsor resident and cheerleader Alyssa Wagner, who battled cancer the year before.

Wagner, also a Grover Middle School student, has been cancer free for a year.

The ribbons would later be tied to trees at West Windsor-Plainsboro High School South on Sunday.

Support Connection Hosts Educational Webinar For Women With Ovarian Cancer

YorktownHeights, N.Y. – Support Connection Inc. will host a free educational webinar for women with ovarian cancer.

It will take place on Tuesday, September 23, from 8 p.m. to 9 p.m.

This free program is available to women nationwide. For those without computer access, it is also possible to participate via toll-free teleconference. The program is being held in September in recognition of National Ovarian Cancer Awareness month.

The speaker is Dr. David Spriggs, of Memorial Sloan Kettering Cancer Center. Spriggs is head of the division of solid tumor oncology and Wintthrop Rockfeller chair of medical oncology.

The webinar will focus on issues pertaining to women with ovarian cancer, including those experiencing a recurrence. Topics will include: the latest information in the development of drugs for advanced ovarian cancer; advances in immune therapy. A question and answer period will follow. Discussion will be facilitated by a Support Connection staff member.

The program is free. Women interested in participating should call Support Connection in advance to register and receive instructions, call Support Connection at 914-962-6402 or 1-800-532-4290.

This program is presented by Support Connection as part of their 2014 “Tune In and Take Charge!” campaign.

In addition to the daily care of women with gynecologic cancers, Spriggs runs clinical trials testing new, targeted drugs, and oversees a small research laboratory looking for answers to questions such as why certain tumors resist drug treatment and how genes can affect the development of tumors.

Image source


Awareness, early detection, and prompt treatment are the keys to surviving ovarian cancer – and that requires funding.

As researchers across the globe race to develop a sensitive screening tool for ovarian cancer, you can facilitate their efforts by donating to a research group, such as the National Ovarian Cancer Coalition or the Ovarian Cancer Research Fund.

I encourage you to share this article with the women in your life – it just might save theirs.





No comments:

Post a Comment